Friends of the National Center on Birth Defects and Developmental Disabilities, previously known as the External Partners Group (EPG), is an American public-private partnership associated with the National Center on Birth Defects and Developmental Disabilities (NCBDDD).[1][2]
| Name | Position | Notes |
|---|---|---|
| Rebecca Abbott | Executive Committee Chair[3] | March of Dimes |
| Alan Brownstein | Executive Committee member (former)[4] | National Blood Clot Alliance (NBCA) |
| Joseph Canose | Executive Committee Vice Chair (former)[4:1] | Christopher & Dana Reeve Foundation |
| Tanisha Clarke | Communications Chair | Association of University Centers on Disabilities (AUCD) |
| Diana Felner | Membership Chair | Tourette Association of America |
| Adriane Griffen | Immediate Past Chair | Association of University Centers on Disabilities (AUCD) |
| Lee Grossman | Executive Committee member (former)[5] | Autism Society of America |
| George Jesien | Immediate Past Chair (former)[5:1] | Association of University Centers on Disabilities (AUCD) |
| Russell Kirby | Executive Committee Chair (former)[5:2] | National Birth Defects Prevention Network (NBDPN) |
| Gloria Krahn | Executive Committee member (former)[5:3] | Oregon Health & Science University (OHSU) |
| Craig Mason | Executive Committee member (former)[4:2] | National Birth Defects Prevention Network (NBDPN) |
| Judy Meehan | Executive Committee member (former)[5:4] | National Healthy Mothers, Healthy Babies Coalition |
| Carolyn Mullen | Executive Committee member (former)[5:5] | March of Dimes |
| Eileen Ouellette | Executive Committee member (former)[5:6] | American Academy of Pediatrics (AAP) |
| Jennifer Bolden Pitre | Executive Secretary[6] | Family Voices |
| Clarke Ross | Executive Committee member (former)[5:7] | Children and Adults with Attention-Deficit Hyperactivity Disorder (CHADD) |
| Sara Struwe | Vice Chair | Spina Bifida Association |
| Judit Ungar | Executive Committee member (former)[4:3] | Tourette Association of America |
| Dan Whiting | Secretary | National Fragile X Foundation |
| Emil Wigode | Executive Committee member (former)[4:4] | March of Dimes |
| Patricia Wright | Executive Committee member (former)[4:5] | Easter Seals |
| Jane Correia | Member-at-Large | National Birth Defects Prevention Network (NBDPN) |
| Amy Haddad | Member-at-Large | Association of Maternal and Child Health Programs |
| Peggy Helm-Quest | Member-at-Large | Wisconsin Department of Health Services |
| Pat Johnson | Member-at-Large | American Academy of Pediatrics (AAP) |
| Rick Rader | Member-at-Large | Orange Grove Center |
| Roberta Carlin | Champion[7] | American Association on Health and Disability (AAHD) |
| Randy Fenninger | Champion | National Blood Clot Alliance (NCBA) |
| Jeannette Mejias | Champion | SPAN Parent Advocacy Network |
| Jennifer Pineo | Champion | - |
| Sheri Romblad | Champion | - |
| Alison Singer | Champion | Autism Science Foundation |
| Courtney Stinnett | Champion | Sickle Treatment and Outcomes Research in the Midwest (STORM) |
| Kayte Thomas | Champion | - |
| Katie Verb | Champion | Hemophilia Federation of America |
| Crystal Bells | Family Liaison[6:1] | Missouri Family to Family |
| Brigit Frank | Family Liaison | Family Voices of Wisconsin |
| Sondra Gilbert | Family Liaison | Kentucky Family to Family Health Information Centers (KYF2F) |
| Artila Mims | Family Liaison | Arc of Illinois |
| Nicole Pratt | Family Liaison | SPAN Parent Advocacy Network |
| Deepa Srinivasavaradan | Family Liaison | SPAN Parent Advocacy Network |
Members of Friends of NCBDDD include:[1:1]
Friends of the National Center on Birth Defects and Developmental Disabilities. (2011). Friends of the National Center on Birth Defects and Developmental Disabilities. https://web.archive.org/web/20240704013120/https://friendsofncbddd.wordpress.com/wp-content/uploads/2011/01/friends-of-ncbddd-fact-sheet.pdf ↩︎ ↩︎
National Center on Birth Defects and Developmental Disabilities. (2008, January 7). NCBDDD External Partners. Centers for Disease Control and Prevention. https://web.archive.org/web/20080307063620/http://www.cdc.gov/ncbddd/partners/ ↩︎
Executive Committee 2020. Friends of NCBDDD. Retrieved July 4, 2024, from http://archive.today/2024.07.04-183038/https://friendsofncbddd.wordpress.com/friends-of-ncbddd-executive-committee/ ↩︎
About Us. Friends of NCBDDD. Retrieved February 20, 2011, from https://web.archive.org/web/20110220210733/http://friendsofncbddd.org/about-us/ ↩︎ ↩︎ ↩︎ ↩︎ ↩︎ ↩︎
About Us. External Partners Group. Retrieved June 22, 2009, from https://web.archive.org/web/20090622071952/http://www.externalpartners.org/index.php?option=com_content&task=view&id=15&Itemid=35 ↩︎ ↩︎ ↩︎ ↩︎ ↩︎ ↩︎ ↩︎ ↩︎
The NCBDDD Family Liaisons. Friends of NCBDDD. Retrieved November 28, 2024, from https://web.archive.org/web/20241128235949/https://friendsofncbddd.wordpress.com/family-representative-liaisons-connections-across-thematic-areas/ ↩︎ ↩︎
Friends as Champions. Friends of NCBDDD. Retrieved November 28, 2024, from https://web.archive.org/web/20241128235906/https://friendsofncbddd.wordpress.com/champions/ ↩︎